The “other” Pink concert this week

We ventured out to the Saskatoon Symphony last night to hear them present the music of Pink Floyd.

I must confess, the only Pink Floyd song I knew before last night was the same one you all know – “Another Brick in the Wall.” I didn’t even know that Greg was a fan of the band! And what an eclectic crowd at the sold out concert  – blue jeans and suits, teenagers and senior citizens. All of them thoroughly enjoying themselves as the SSO and the band “Jeans and Classics” presented “The Wall” and “Dark Side of the Moon”.

Unfortunately, not knowing much about the band meant I also had no idea who Syd Barrett was, nor the sad story of his descent into schizophrenia just two years into the band’s rise in fame. It is obvious how deeply affected Roger Waters was by his friend’s mental illness; it’s a common theme running through many of the lyrics he penned.

While it made for a rather melancholy evening, it also reinforced yet again that we are not alone in our experience. The power of music is amazing; to heal, to inspire, to enlighten minds. And while music can also poke at our most raw and tender spots by suddenly evoking a  painful memory – there is a certain measure of gratitude that comes with hearing the truth of your story shared out loud.

Nobody’s Home

I’ve got a little black book with my poems in
I’ve got a bag with a toothbrush and a comb in
When I’m a good dog they sometimes throw me a bone in
I got elastic bands keeping my shoes on
Got those swollen hand blues.
Got thirteen channels of shit on the T.V. to choose from
I’ve got electric light
And I’ve got second sight
I’ve got amazing powers of observation
And that is how I know
When I try to get through
On the telephone to you
There’ll be nobody home
I’ve got the obligatory Hendrix perm
And I’ve got the inevitable pinhole burns
All down the front of my favorite satin shirt
I’ve got nicotine stains on my fingers
I’ve got a silver spoon on a chain
I’ve got a grand piano to prop up my mortal remains
I’ve got wild staring eyes
I’ve got a strong urge to fly
But I’ve got nowhere to fly to
Oh Babe when I pick up the phone
There’s still nobody home
I’ve got a pair of Gohills boots
And I’ve got fading roots.

The Paper Chase

If we are truly going to be heard, and if the role our dysfunctional mental health care system played in the death of our son is to be accepted as truth, then we need to paint as factual a picture of Jordan’s journey as we can. How many days did he spend in hospital. How many interactions did he have with the police. How many  minutes of talk therapy did he receive over four years.

In order to paint that picture, we needed to gather all the disparate pieces of his health care record together. Achieving this proved nearly as difficult as navigating through the system in the first place. Different agencies, governed by different legislation, ruled by different policies and requiring different forms. I spent hours searching websites for contact information and making calls – each time having to describe our loss and explain our purpose.

Jab jab jab goes that sharp knife.

As of today, we finally have his full record; approximately 6 inches of paper when stacked on top of each other. Surprisingly small in comparison to the four years of pain it represents.

The largest pile represents his hospital stays. While his brother was a frequent flyer of the EENT service at St Paul’s hospital, Jordan’s interactions were usually trauma related and his files were primarily from RUH. Although the Evan Hardy canoe trip in Grade 11 had us visiting City Hospital for investigation of the ankle injury he sustained while jumping off a cliff into the river.

And then of course, there was his birth.

baby In 1989 I  was working as a registered nurse at the old City Hospital and I naively thought “wouldn’t it be nice to have my baby at the hospital where I work”. In the middle of August. With no air conditioning. And no anesthetists on call and therefore no hope of an epidural. Jordan stubbornly resisted his arrival to the world – my first taste of his negative first reaction to anything I ever asked him to do. It took 36 hours, forceps, vacuum suction and me inhaling an entire canister of laughing gas before he finally unhooked his feet from my rib cage and decided to arrive.

While I really had no desire to see that experience documented in the notes of the brave nurses who cared for me (“patient has now been screaming for 60 minutes”, “patient has slapped husband in the face with wet wash cloth again”), I was absolutely unprepared to turn over the emergency record detailing his ankle injury and find this:

chart

The  irony of his birth records being destroyed the day after his death took my breath away.  I am still searching for the meaning in that.

Obtaining  his records was the easy part  – reading them will take more courage than I have at the moment.

Christmas Eve

IMG_0251Again, at Christmas did we weave

The holly round the Christmas hearth;

The silent snow possessed  the earth,

And calmly fell our Christmas-eve.

 The yule-log sparkled keen with frost,

No wing of wind the region swept,

But over all things brooding slept

The quiet sense of something lost.

 Alfred Tennyson

Oh Christmas tree…

lucas tree

“Why oh why” grumbled Lucas, “Does our family tradition have to include getting the tree on the coldest frigging night of the year?” Minus 37 with the wind-chill – a new record.

A major hurdle has been negotiated and I am so proud of all of us.

Decorating a Christmas tree has always been my favorite part of the holiday season. Even when I was in high school and living at home on Ave J, I would drag a Charlie Brown tree home from Mayfair Hardware and decorate it with ornaments purchased at the Army and Navy store (some of which are still around). I was a tinsel user from way back until I met Greg who was not a big fan of the stuff (more conflict ensued as we discovered that I was a gentle draper of tinsel and he was a thrower of tinsel clumps.) But I stuck to my guns till the boys were old enough to have an opinion (“it looks stupid mom”) and I was out voted.

Once we moved into our home and had the advantage of a cathedral ceiling (allowing for very tall trees), and once the boys were born and became part of the annual tree decorating tradition, things got a little out of control. Gone were the days of my beloved Charlie Brown tree – replaced instead with manly monsters that had to be wrestled into the house and secured with additional bolts and strings to prevent them from tipping over and taking the house with them.

There was the year we tried a different tree vendor and discovered as we were setting up the tree that it had been sprayed with a sickly green colored fire retardant that had everyone breaking out in a rash and hives.

There was the year we bought the most perfectly shaped, perfectly colored blue/green beauty of a tree – only to discover that “trimmed” meant none of the branches actually had the strength to hold an ornament.

The best year ever though, was the year Greg dragged in a 12 foot monster, at least a foot of which bent over at the ceiling once we hammered it into the stand. “Are you sure it isn’t too big Clarke?” I asked. “No worries” said Greg as he cut the final string. Thwack. Thwack. Thwack. Children flew. Lamps were broken. Paintings were knocked off the wall. It was a pine scented, sap spraying Christmas explosion as the tree unfurled itself to its full 8 foot wingspan. The boys loved it! They slept under its branches every night that year and fondly referred to it as their “Christmas in the forest”.

This year finds us scaling back a bit – not quite to the Charlie Brown tree of my youth, but certainly smaller, easier to set up, less time to decorate. I have been dreading Christmas since the day Jordan died and   I honestly did not think I would be able to find the courage to even fetch the box that holds the decorations, let alone touch the ornaments that Jordan’s hands have touched so many times over the years.

But as December arrived I found myself wanting to provide Lucas with some sense of stability, some way to reassure all of us that we will make our way through. So we talked about it as a family and the tree was bought. And we survived.  We didn’t wallow, we reminisced and even laughed. I was determined to make Jordan part of it all, so we lit his candle and hung all the decorations that Jordan had made over the years. And we talked about the ornaments that represent special moments; like the Christmas we went to Disney World, the Christmas spent in a hut in the middle of the Abel Tasman trail in New Zealand, ornaments representing their favorite things, like hockey and soccer. And we found some joy in the remembrance of those priceless family moments.

I am well aware that I am still very much cushioned from reality. That some force is at work protecting me from the full pain of this unbearable loss. I like to imagine that it is Jordan’s gift to us – this ability to remember him and love him and take comfort from the familiar traditions we have always shared during this holiday season. But still, it is so very hard.

Small steps. Deep breaths.jordan

Reflecting on my parenting skills…

Lucas blue

It’s only now, as my youngest child has reached adulthood, that I am  finally able to assess the full impact of my parenting mistakes. And the good news that I want to share is that it doesn’t seem to have had any lasting negative effect. In fact, there is some evidence that my “mistakes” have actually resulted in positive outcomes.

I have spent countless hours over the years tormenting myself because I wasn’t like the other moms. You know the ones I mean. The ones who never raise their voice, who have never sworn in their child’s presence (nor… gasp… actually directed an invective at their child). Who have never grabbed them by the arm, shook them, and yes, I admit it, spanked them. Who’ve never had an out of body experience; watching and listening to themselves as they screamed at a decibel level that could peel paint off a wall.

Those mom’s also didn’t have toilets that would have looked at home in a service station. Or dust bunnies the size of a small country hiding under the fridge. They  never threw a fruit rollup at their kid on the way to a soccer game and counted it as a vegetable. Nor can they claim to be responsible for the huge profit margin  McDonald’s Restaurant realized during the boom years of 1991- 2003.

I am quite certain that somewhere in my neighborhood there were children who actually rose up quietly off the couch, brushed their teeth, said a prayer and quietly climbed into bed for a solid 10 hours of sleep each night. Whereas I seem to have spent most of my children’s lifetime rocking them to sleep, lying down with them till they (or more likely I) fell asleep, and dragging them kicking and screaming to the bedroom, confiscating flashlights, and threatening any number of punishments in an effort to get the lights out before 11 pm. (Mrs. Chartier, Lucas seems very tired in the afternoons. Yeah? Well maybe you could let him take a nap ’cause I give up trying to get him to go to bed).

I let them watch the Simpsons ’cause it was on at 5 pm and the TV was too far away from the kitchen where I was frantically putting supper together for me to monitor it. I let them watch Seinfeld every night for an entire summer because it came on at 1000 PM and for the first time in years they would cuddle up on the couch with me to watch and the boys would laugh together instead of punching each other out.

Because I worked, and especially because I worked at a job that I was passionate about but that periodically demanded a lot of time from me, I gave them what felt like too much independence. I was wracked with guilt because I felt they were on their own too much. And I know for certain that they were left alone at a younger age than many of their classmates.

So where are the positives?

They did their own laundry. They did housework (yes, they needed a list and usually some threat of violence but they both knew how to wield a vacuum). Lucas can cook anything from a full turkey dinner to a gourmet feast complete with a scratch made chocolate cake.

Yes, they were loud and annoying and they learned from the master how to raise their voices. But they also learned how to demand what they needed, to stick to their principles, to call people on bad behavior.

While I didn’t appreciate it when the fast wit and quick retorts were directed at me, the wry sense of humor they honed on Seinfeld and Simpson’s made them good company, interesting conversationalists and excellent debaters.

While I recognize that I was likely an even worse mother than usual when I was taking my Masters degree (as was their father when he took his) they seem to have grasped the value of education and that achieving goals requires hard work.

Lucas has successfully navigated his first semester in the College of Engineering. We had our concerns about him tackling school so soon after the death of his brother. And even more concerns when we discovered that he had a seven class load to manage. But he navigated his way through with his usual pragmatic ease and with all seven finals now complete, it does indeed appear that he has passed every class.

As I watched him study (holed up in his room, living in his PJ’s, rarely bathing) I was reminded of a weekend when he was about 9 or 10 and he had once again procrastinated on a major school assignment. I think I spent the entire weekend yelling at him. By 10 pm Sunday night I was completely finished with him. I pronounced that he was a lazy shit, grounded him for the rest of his life, told him I hoped he failed and stomped off to bed. Nice. Yet another parenting success story for my scrapbook. About an hour later he arrived at my bedside for a hug. Still damp and sweet smelling from the shower, he wrapped his arms around me and said “You know mom, the important thing is that I am done. It’s not like the prince rescues the princess from the fire breathing dragon two weeks in advance. He does it in the knick of time and it’s the fact that he does it that’s important”.

How did I get so blessed?

I still suffer too much guilt over my past parenting indiscretions to feel like I can take any credit for how well they both turned out. However I do take comfort in knowing that they seem to have turned out pretty perfect despite their mother’s failings.

The one true lesson I have learned? As long as you love them, really… the rest is insignificant.

The light of love

Joannes Phone 054 Joannes Phone 052

 

 

 

 

 

 

 

We light these candles in memory of Jordan.

One candle to represent our grief.  The pain of losing you is intense; it reminds us of the depth of our love for you. 

One candle to represent our courage – to confront our sorrow, to comfort each other, to change our lives. 

One candle in your memory – the times we laughed, the times we cried, the times we were angry with each other, the silly things you did, the caring and joy you gave us. 

These candles are  the light of love.  As we enter this holiday season, we cherish the special place in our hearts that will always be reserved for you.  We thank you for the gift your living brought to each of us. 

We love you Jordan. 

Joannes Phone 062

A ribbon of light around the world…

This Sunday, December 8th, please consider taking a moment to light a candle in remembrance of Jordan and all the other young people who lost their lives this year. candlelightingThe Compassionate Friends Worldwide Candle Lighting unites family and friends around the globe in lighting candles for one hour to honor the memories of the sons, daughters, brothers, sisters, and grandchildren who left too soon. As candles are lit at 7:00 p.m. local time, hundreds of thousands of persons commemorate and honor the memory of all children gone too soon.

Now believed to be the largest mass candle lighting on the globe, the 17th annual Worldwide Candle Lighting, a gift to the bereavement community from The Compassionate Friends, creates a virtual 24-hour wave of light as it moves from time zone to time zone. Started in the United States in 1997 as a small internet observance, but has since swelled in numbers as word has spread throughout the world of the remembrance. Hundreds of formal candle lighting events are held and thousands of informal candle lightings are conducted in homes as families gather in quiet remembrance of children who have died, but will never be forgotten.

Thank you.

Once a Falcon…

Another gift…falconThe Arns Falcon Bantams informed us that they will be honored to present the Jordan Chartier Memorial Trophy to this year’s (and for years to come)Outstanding Lineman.   

We also learned that the Bantam Team wore black arm bands this season to celebrate and honour the lives of Quinn Stevenson and Jordan Chartier who were Falcons.  Coach Chris Lemkky told the boys that “once a Falcon, always a Falcon at heart and to wear these arm bands with pride”.  This slide of Jordan and Quinn ran in the slide show during the banquet.

They asked us to prepare something that could be read when the trophy was awarded:

Jordan Chartier was an exceptional young man.  An Evan Hardy Soul, he graduated from Grade 12 as one of the top 10 students; qualifying him as a Greystone scholar. He received academic awards for the highest marks in science and in industrial arts and the furniture he built in Woods was of artisan quality.

Jordan held himself to such incredibly important values: kindness, honesty, trustworthiness. He had a strong work ethic, strong views on social justice, a commitment to physical health, and he leveraged the Chartier gene for determination (some might say stubbornness) to be successful in everything he tried.

He believed in community service and demonstrated that commitment by donating blood and volunteering for 3 years with the PAALS program on campus; spending every Saturday morning assisting children with physical and intellectual impairments participate in physical activities. During his first year at the University of Saskatchewan, Jordan was a volunteer coach for the Titans.

He was a talented athlete who achieved success in several sports (track, triathlon, hockey, soccer), but football was his true passion. Jordan shared his love for the game with his grandfather, Rusty Chartier, who was a member of the 1953 Canadian Championship Hilltops Football Club.  It was also a point of great pride that the team his Grandfather played for was coached by Bob Arn and John Babineau.

Jordan spent five years playing for the Falcon’s, beginning with the Peewee team in 2000. He was 11 years old and we were stunned when they put this skinny kid on the Offensive Line where he played center and on special teams. We thought the coaches were crazy but they clearly saw something in Jordan and he responded to the challenge.

Jordan led by example, starting with never missing a practice rain, snow or shine and he played with the same level of intensity regardless of whether it was a practice or a provincial championship.  A former teammate described an occasion when he had let his guard down during a practice only to find himself on the receiving end of a crushing blow from Jordan. “You do not stop until the whistle is blown” Jordan reminded him.

His proudest moment as a Falcon was when the team went undefeated; capping the season with the city championships. He brought his extensive football experience with him to the Evan Hardy Senior Football team continuing to play offense, defense and special teams; there were many games where Jordan didn’t come off the field. His leadership and skills contributed to the Souls achieving the High School Championship and going to provincial finals. At his final football awards banquet, Jordan was presented with the “Fighting Heart” award; two words that perfectly describe his drive and determination and his love for the game.

Many of the values Jordan lived his life by were honed and reinforced by his experience with Kinsmen Football. He learned the value of hard work, about discipline and commitment, teamwork and respect for others.  At the first Falcon awards banquet he ever attended, Jordan was given a certificate with the motto “Fortune Favors the Brave”. And that is probably the most valuable lesson Jordan received from playing football – to be brave under difficult circumstances, to have the courage to tackle impossible tasks, to never stop fighting.

Once a Falcon, always a Falcon.

Leaning in … and looking back

photo (2)The first few weeks of November were very hard. I over extended my schedule, didn’t take time to exercise, or to grieve, and as a result was left feeling vulnerable and constantly close to tears. Which the control freak in me absolutely hated!

It didn’t help that we spent the  afternoon of November 8th with the Chief of Police and two of his superintendents reviewing Jordan’s history with the Saskatoon Police Service. Reading the police reports detailing the circumstances that lead to his being arrested last March was WAY harder than I expected;  every officer who came in contact with him that weekend knew, and documented, that he was obviously very ill and yet he ended up in jail rather than in emergency. Reliving the desperation and fear we experienced during that last psychotic break was so emotionally draining. I realized that if I was going to continue to try and share Jordan’s story, I needed to find a way to build some resilience.

Loyal  followers of this Blog (all 2 of you!) will know I haven’t had much luck when it comes to finding a counsellor. However I am finding it helpful to borrow the advice being given to a friend by her grief counsellor.

As a result, one of the things I have been working on is trying to control when the grief comes. The counsellor’s recommendation was to set aside 20 minutes each day, at the same time each day, and lean into the grief and feel all of the feelings that come. Then thank Jordan for the shared time and let him know that I have to go and do other things.  The therapist said it was important to try to compartmentalize the grief, but not to block it – which is why it is so important to set aside time each day.  If we spend too much time leaning into the grief we deplete our reserves of strength.  And blocking the grief for too long leaves you feeling weepy and vulnerable. She also reinforced that working too much depletes our reserves and doesn’t allow time for positive things (like driving Lucas to school, walking at the pool). Taking more control over my calendar is a work in progress.

Journalling as a coping mechanism is highly recommended by everyone, and they hardly need to sell me on the emotional merits of writing – it’s a tool I have used for years. But there have been many times over the last four years (and especially in the weeks after Jordan’s funeral) where the grief and pain was so profound that writing seemed risky to my emotional well being and I physically could not make myself do it. But lately there has been a little voice in my head urging me to write – telling me that getting it out of my head is the only way to heal my heart.

So I have started with a relatively easy first step –  retrieving some of the emails I have written since Jordan first became ill and dumping them into this blog. You will notice that there are some huge gaps – times when dealing with Jordan’s situation and dealing with life was simply too overwhelming, too painful to share. Going back in time and filling in those gaps is the harder, but necessary, next step. We’ll see how it goes.

“I am the master of my fate, the captain of my soul”

Remembering Jordan…

Halie

Our beautiful neice Halie posted this note and picture on Facebook today. Another reminder of how much he was loved and the many lives Jordan touched.

For 19 years I was lucky enough to have known, and spent time with my amazing cousin Jordan Chartier. Many peoples lives have been changed forever after losing such an amazing person on July 30th of this year. Jordan was an academic, an athlete and an overall amazing person who valued family above all else. He was someone I looked up to and and aspired to be like in many ways. Before his cremation our family was blessed to be able to say goodbye to Jordan in a  very special way. Jordan was placed in a plywood box that we were able to sign with our messages to send with him. Earlier that day I had learned that Jordan spent one of his last nights at the lake star gazing. This happens to be one of my absolute favorite things to do in the summer. So on his box I drew stars, as many as I possibly could, so he could be surrounded by stars forever. Later after we had  left the funeral home, I looked at my hand to see a perfectly printed star. Ever since that moment I have known that I wanted it to be there forever. The perfect representation of my cousin and a reminder of the amazing person I was lucky enough to know. Today I made it permanent and got the little star tatooed on my wrist.

If you’ve made it all the way through this paragraph I have written; please take a moment out of your day to learn about mental illness. The goal is to raise awareness so that other families don’t have to go through  what our family has had to.

In loving memory of Jordan Chartier.