Help. Thanks. Wow.

I am a big fan of the writings of  Anne Lamott. My copy of her book “Bird by Bird; Instructions on Life and Writing” is pretty ragged – filled with turned down corners, yellow highlighter and notated sentences. She expresses herself with this self-deprecating, honest humor and you find yourself reading a paragraph and thinking “Oh my god that is exactly how I feel.” Anne is a recovering alcoholic, a single mom, a lover of dogs, and a firm believer in a higher power.

I’ve struggled with the concepts and precepts of organized religion most of my life.  But I always felt that there had to be something “more” out there; some force that intervenes at key points in history and says “Whoops, I think you folks better go left here instead of right”. How else do you explain the presence on earth of people like Nelson Mandela, Mother Theresa, and Malala Yousufzai?  There are too many stories of miracles and near death experiences not to at least make you pause and wonder if there is something more out there.

Then Jordan died.

And as Alexander Hemon so eloquently describes in his account of his infant daughter’s death, we “stood in the moment that divided our lives into before and after;  where before was forever locked from entry, and after was exploding into a dark hole of pain.” And I found it impossible to believe that there was a God, or any kind of benevolent force at work. There is no meaning in Jordan’s death – just a gaping void in the world.

Eventually  I found myself envying those around me with strong faith – who were comforted by their absolute belief that Jordan is in a better place. Never having had such certainty and conviction I found myself searching for a way to find similar peace.

One evening, when we had finally reached a point that we could safely venture out in the world, we resumed our Friday night tradition of supper at McNally Robinson’s and then a long browse through the book shelves. I found myself drawn to the religious section and discovered Anne had written a new book  “Help. Thanks. Wow. The three essential prayers”.

How brilliant is that? Calling for help when you realize you, and the world, are broken beyond your ability to repair, giving thanks for blessings big and small, and expressing awe at those things that so extremely dwarf our human capabilities. To Lamott, prayer is quite simply about honesty, a desire to connect with something outside of ourselves and a willingness to invite light and air into our dark, stagnant places.

Prayer is private, even when we pray with others. It is communication from the heart to that which surpasses understanding. To the Good, the force that is beyond our comprehension but that in our pain or supplication or relief we don’t need to define or have proof of any established contact with.

Prayer can be motion and stillness and energy – all at the same time. It begins with stopping in our tracks, or with our backs against the wall, or when we are going under the waves or when we are just so sick and tired of being psychically sick and tired that we surrender, or at least we finally stop running away and at long last walk or lurch or crawl toward something. Or maybe, miraculously, we just release our grip slightly.

Most of us figure out by a certain age – some of us later than others – that life unspools in cycles, some lovely, some painful, but in no predictable order. So you have lovely, painful and painful again, which I think we all agree is not at all fair.

Sometimes we find ourselves hurt beyond any reasonable chance of healing. We are haunted by our failures and mortality. And yet, the world keeps on spinning, and in our grief, rage, and fear a few people keep on loving us and showing up. It’s all motion and stasis, change and stagnation. Awful stuff happens and beautiful stuff happens and it’s all a part of the big picture.

We are too often distracted by the need to burnish our surfaces, to look good so that other people won’t know what screwed up messes we, or our mate or kids or finances, are. But if you gently help yourself back to the present moment, you see how life keeps stumbling along and how you may actually find your way through another ordinary or impossible day.

Most humbling of all is to comprehend the lifesaving gift that your pit crew of people has been for you, and all the experiences you have shared, the journeys together, the collaborations, births and deaths, divorces, rehab, and vacations, the solidarity you have shown one another. Every so often you realize that without all of them, your life would be barren and pathetic.

The marvel is only partly that somehow you lured them into your web twenty years ago, forty years ago, and they totally stuck with you. The more astonishing thing is that these greatest of all possible people feel the same way about you – horrible, grim, self-obsessed you. What a great scam, to have gotten people of such extreme quality and loyalty to think you are stuck with them. Oh my God. Thank you.

We pray without knowing much about whom we are praying to. We pray not really knowing what to pray for. We pray not really knowing how to pray. But just as Samuel Beckett admonished us to fail again and fail better, we try to pray again, and pray better, for slightly longer and with slightly more honesty, breathe and think more deeper, and with more attention.

Help. Thanks. Wow.

It is a work in progress.

The “other” Pink concert this week

We ventured out to the Saskatoon Symphony last night to hear them present the music of Pink Floyd.

I must confess, the only Pink Floyd song I knew before last night was the same one you all know – “Another Brick in the Wall.” I didn’t even know that Greg was a fan of the band! And what an eclectic crowd at the sold out concert  – blue jeans and suits, teenagers and senior citizens. All of them thoroughly enjoying themselves as the SSO and the band “Jeans and Classics” presented “The Wall” and “Dark Side of the Moon”.

Unfortunately, not knowing much about the band meant I also had no idea who Syd Barrett was, nor the sad story of his descent into schizophrenia just two years into the band’s rise in fame. It is obvious how deeply affected Roger Waters was by his friend’s mental illness; it’s a common theme running through many of the lyrics he penned.

While it made for a rather melancholy evening, it also reinforced yet again that we are not alone in our experience. The power of music is amazing; to heal, to inspire, to enlighten minds. And while music can also poke at our most raw and tender spots by suddenly evoking a  painful memory – there is a certain measure of gratitude that comes with hearing the truth of your story shared out loud.

Nobody’s Home

I’ve got a little black book with my poems in
I’ve got a bag with a toothbrush and a comb in
When I’m a good dog they sometimes throw me a bone in
I got elastic bands keeping my shoes on
Got those swollen hand blues.
Got thirteen channels of shit on the T.V. to choose from
I’ve got electric light
And I’ve got second sight
I’ve got amazing powers of observation
And that is how I know
When I try to get through
On the telephone to you
There’ll be nobody home
I’ve got the obligatory Hendrix perm
And I’ve got the inevitable pinhole burns
All down the front of my favorite satin shirt
I’ve got nicotine stains on my fingers
I’ve got a silver spoon on a chain
I’ve got a grand piano to prop up my mortal remains
I’ve got wild staring eyes
I’ve got a strong urge to fly
But I’ve got nowhere to fly to
Oh Babe when I pick up the phone
There’s still nobody home
I’ve got a pair of Gohills boots
And I’ve got fading roots.

The Paper Chase

If we are truly going to be heard, and if the role our dysfunctional mental health care system played in the death of our son is to be accepted as truth, then we need to paint as factual a picture of Jordan’s journey as we can. How many days did he spend in hospital. How many interactions did he have with the police. How many  minutes of talk therapy did he receive over four years.

In order to paint that picture, we needed to gather all the disparate pieces of his health care record together. Achieving this proved nearly as difficult as navigating through the system in the first place. Different agencies, governed by different legislation, ruled by different policies and requiring different forms. I spent hours searching websites for contact information and making calls – each time having to describe our loss and explain our purpose.

Jab jab jab goes that sharp knife.

As of today, we finally have his full record; approximately 6 inches of paper when stacked on top of each other. Surprisingly small in comparison to the four years of pain it represents.

The largest pile represents his hospital stays. While his brother was a frequent flyer of the EENT service at St Paul’s hospital, Jordan’s interactions were usually trauma related and his files were primarily from RUH. Although the Evan Hardy canoe trip in Grade 11 had us visiting City Hospital for investigation of the ankle injury he sustained while jumping off a cliff into the river.

And then of course, there was his birth.

baby In 1989 I  was working as a registered nurse at the old City Hospital and I naively thought “wouldn’t it be nice to have my baby at the hospital where I work”. In the middle of August. With no air conditioning. And no anesthetists on call and therefore no hope of an epidural. Jordan stubbornly resisted his arrival to the world – my first taste of his negative first reaction to anything I ever asked him to do. It took 36 hours, forceps, vacuum suction and me inhaling an entire canister of laughing gas before he finally unhooked his feet from my rib cage and decided to arrive.

While I really had no desire to see that experience documented in the notes of the brave nurses who cared for me (“patient has now been screaming for 60 minutes”, “patient has slapped husband in the face with wet wash cloth again”), I was absolutely unprepared to turn over the emergency record detailing his ankle injury and find this:

chart

The  irony of his birth records being destroyed the day after his death took my breath away.  I am still searching for the meaning in that.

Obtaining  his records was the easy part  – reading them will take more courage than I have at the moment.